Thought we would just keep everyone in the loop of how our day went in light of the surgery tomorrow, so here it is!
Well, it's been a crazy day, but we are finally settled in our hotel for the night. Baby Kai was a TROOPER all day long. Seemed like we had to be about 6 million different places. The poor kid couldn't even get a nap for more than 20 mins or so, but he did great.
First stop was at the Pediatric Specialty Clinic to make sure everything was ok with his bottom and the prior surgery there. We saw a PA that we have worked with quite a bit in the past and she said everything looks GREAT and was very happy with how everything looked. There was no scar tissue so that was good news. We grabbed a quick bite to eat, and next stop was the anesthesia dept to go over everything there with them. Dr. Carter said that he had helped with Kai's first surgery and said he remembered because Kai had an unusual name! :) That all went as expected and we even had a little time, so I nursed Kai and tried to get him settled down for at least a LITTLE nap. He was so overtired by that point, what with it being 2:00 and he hadn't really slept all day. I did finally get him to sleep and he slept in my arms until the next appointment with the Neurosurgery people. They of course, have to tell us all the risks and possible complications before we sign the consent forms and it almost made me cry. We have been told over and over by different medical staff that Dr. Menezes is the best of the best, and Molly (the PA from Ped Surg that we saw) even told us that people come from all over the world to see him, so that is comforting. Next stop was lab work and my tough little guy didn't even cry. He just sat on Sam's lap and was so calm. He did cry just a sec at the end, but I think it was because he wanted his arm back, not because they were hurting him. :) Next stop was the EMG dept. Basically what they did there was hook up some things to him to test the nerves in his legs. They said that it feels kind of like a static electricity shock. He did fine for the first leg, other than being a little concerned, but by the time they did the second leg, my poor little baby was DONE. He kind of looked around like 'why are all you people hurting me?' and then he cried. He did cry hard then, but that is to be expected and I was so proud of how good he had done. He was such a happy baby all day and we got lots of comments about how cute he is and what a good baby he was. He was happily waving to anyone who would wave back and talking up a storm.
We did not get into the Ronald McDonald House unfortunately, but the guy there suggested a hotel and even called to make the arrangements for us. RMH has a deal with several hotels so when they are full, patients and their families can get a discounted rate. So we are in a Comfort Suites which is very nice. Had some Texas Roadhouse for supper-yummy :) and now are just chillaxin' and playing with Little Man.
Kai is first surgery tomorrow morning, so we have to be at the hospital at 6 with surgery at 7:15. They told us it will probably take about 6 hours. We will probably just stay at the hospital with him in his room until we can get in at RMH, since he will be in ICU and their rooms are pretty good size and private. They told us today that he will be sedated for a minimum of 2 days, possibly up to 4 depending on how everything goes and then I guess we go from there!
I have a super happy little boy playing peek a boo over the top of my computer and those little laughs are just too cute to resist, so I will log off for tonight! We would value your prayers and thanks for all the kind words and encouragement. They mean a lot!
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