I don't even know really where to begin this post. Today didn't turn out like I had hoped and I'm still trying to wrap my brain around it. I guess the best place to start is at the beginning!
First up this morning was a kidney ultrasound. Kai was a little hesitant at first, but once we got going, he did awesome. He just laid there so good while the tech did her thing. I think he was a little worried that it was going to hurt but once we got going he looked at me and smiled and said "dat tickles Momma!" We had some time before the urodynamic test, so we grabbed some lunch and watched the diggers for a while. They are building a new Children's Hospital, so there is lots of construction which thrills my little man to no end!:) Then off to the urology lab for the test.
Basically what they do during a urodynamic test is see how much your bladder can hold before your bladder contracts and you pee. They take x rays of your bladder and record all sorts of squiggly lines on a computer monitor. Kai had to lay on the lab table for a REALLY long time, but again, he did amazing. The techs were SUPER and did a great job of keeping him distracted with bubbles and sparkly wands that eventually were turned into dueling swords-he's such a boy! :) He did start to fuss just a bit just as they were about done, but in his defense, it was naptime and it had been a pretty long test. Mommy caved and let him have his pluggy and the Kindle, so he was happy until they were done. Once we got out of there, we headed to the Pediatric Specialty Clinic to see Dr. Cooper. We had to wait a REALLY long time, so Kai finally crashed and ended up taking a pretty good nap. Well, pretty good for a doctors office/testing day, but a nap none the less. :) Daddy managed to get one in too, and Mom was thankful I had just downloaded a new book on my Kindle.
Once we got into to see Dr. Cooper, he immediately told us that the test results were not good. Kai's bladder should normally hold around 120 ml. Today his bladder held 450 ml. That's almost 4 times what it should. Dr. Cooper said Kai's bladder never completely empties. The urine just dribbles out as he moves around. And now, since his bladder is so full all the time it's starting to put pressure on his kidneys and that is a bad thing, so now we have to do what is called intermittent catheterization. 3 times a day we have to cath him to drain his bladder and we'll see what we happens in 3 months when we go back for another kidney ultrasound. Not at all what I wanted to hear. To be honest, after Dr. Cooper left, I cried. I know that I have so much to be thankful for, but it is just so hard to hear that there is something wrong with your baby. Something that will affect him for the rest of his life. Before he left though, Dr. Cooper was VERY sweet. He said he knew this had been a tiring day for us, and that what he had told us was a lot to process. He said we could come back to do the catheter training if we wanted, but I didn't want to make another trip so he called the nurse. She had us practice a couple of times, which went much better than I had anticipated. It's definitely NOT something I relish doing but I think I can handle it. Luckily Kai has no sensations at all in his "boy parts" so I don't even know if he realized that we were doing a catheter. That makes it MUCH easier for me because if I felt like I was hurting him, it would make it so much harder to do. Thank you all for your kind words, texts, and prayers. They really mean a lot and if you could continue to pray, that would mean the world to me. Hopefully this all makes sense :) because I didn't get a lot of sleep last night and my brain is SO tired right now. I will do a re-read in the morning and hopefully fix any mistakes! LOL!
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